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FOI release

FOI – 2025-000001 Coagulation Factors (HTML)

Published on 28 January 2025

Date received – 02 January 25 | Date responded – 28 January 25

Request

In the last 3 months (October, November, December 2024), how many haemophilia A and B and von Willebrand patients were treated with the following coagulation factors in your trust and how much volume (IUs or mg) was used?

  • Hemlibra (non-inhibitor patients)
  • Hemgenix
  • Advate
  • Adynovi
  • Elocta
  • Esperoct
  • NovoEight
  • ReFacto AF
  • Nuwiq
  • Idelvion
  • Refixia
  • Alprolix
  • BeneFIX
  • Replenine
  • Rixubis
  • Veyvondi
  • Voncento
  • Wilate
  • Willfact

Response

We have now completed the search of our records and can provide you with the following information:

Appendix 1 – Homecare Patient Delivery of Coagulation Factors. This appendix provides information that NSS National Procurement (NP), holds in relation to framework NP30124 Homecare Deliveries of Clotting Medicines for the months requested.

Under Section 17 of the Freedom of Information Act, 2002 (FOISA) an organisation does not have to provide that information if it does not hold it. NHS National Services Scotland (NSS) does not hold the data for the exact number of patients. The figures provided are taken from the unique patient IDs and as such, this does not necessarily represent the number of patients. Where there is has been no usage of a particular Coagulation Factor, this is marked as n/a.

Under Section 38(1)(b) of FOISA, NSS has redacted details where patient numbers are 5 or below to protect their identity in line with the Caldicott Principles.

We can also provide you with the following:

Appendix 2 – Pharmacy and Homecare Usage of Coagulation Factors. This appendix provides the total usage of Coagulation Factors in Scotland for the months, October and November 2024. These figures include Home Delivery & Pharmacy issue.

Under Section 17 of the Freedom of Information Act, 2002 (FOISA) an organisation does not have to provide that information if it does not hold it. NHS NSS does not hold the requested data for December 2024 as this is not yet available. Where there is has been no usage of a particular Coagulation Factor, this is marked as n/a. We are also unable to provide patient numbers for this as we do not record that level of detail.

Please note there may be other usage in hospitals that is not detailed in these appendices. You may wish to contact the individual Health Boards at the addresses below who may be able to provide more detailed figures:

I trust you will find the information of assistance and if you require any further information, please do not hesitate to contact us. ​ If you are unhappy with any aspect of how we have dealt with your request, you can make representations to us asking us to review the handling of your request. ​ If you require any further information, please contact the Associate Director Governance and Board Services (Board Secretary) within 40 working days of the date of this correspondence. ​

Contact

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Email: nss.foi@nhs.scot

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Address

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NHS National Services Scotland
Headquarters
Gyle Square
1 South Gyle Crescent
Edinburgh
EH12 9EB

​ If after a review you are still unhappy, you also have the right to apply to the Scottish Information Commissioner, who can be contacted at Kinburn Castle, St Andrews, Fife, KY16 9DS, or via their application form. ​ National Services Scotland (NSS) is committed to publishing all information released in response to Freedom of Information requests. You can view all FOI responses within our FOI Publications repository.

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